February 2011 \ Features \ The Pinkburst Project

The Pinkburst Project

Elianne Halbersberg, Photos by John Peden

Twisted Sister’s Jay Jay French commissions a who’s-who of guitar and bass manufacturers to create 25 custom “pinkburst” guitars and amps to benefit research into uveitis—a disease responsible for 10 percent of blindness in the US.


Premier Guitar February 2011

(5 of 6)

What is Uveitis?
In layman’s terms, uveitis is inflammation of the uvea—the middle section of the eye. The third-leading cause of blindness among girls in the US, uveitis is rare and incurable, but with early detection it can be treated. Because there are no physical symptoms, it goes unnoticed by the patient until their vision is impaired.

Jay Jay French’s daughter, Samantha, now 17, was diagnosed at age 6 during what her father describes as “a very routine, rudimentary eye exam at school.” Further examination was recommended, which led the family to the Massachusetts Eye Research and Surgery Institution in Cambridge, where Samantha came under the care of Dr. Stephen Foster. “MERSI specializes in inflammatory diseases, and Dr. Foster is the leading specialist,” says French.

Uveitis is often associated with other medical conditions, including infection, trauma, and autoimmune diseases such as rheumatoid arthritis—and particularly juvenile rheumatoid arthritis. In patients with the disease, the immune system attacks what it mistakenly perceives as foreign bodies, resulting in severe inflammation that must be treated with pain medication, steroids, and, in extreme cases, potentially dangerous drugs. “Behind the uvea lie hundreds of thousands of capillaries, the smallest capillaries in the body,” says French. “If uveitis is not caught quickly, the immune system kills the lens and causes glaucoma and blindness. You can hold it back, and in some cases it goes away for reasons that doctors cannot understand.”

According to French, who has immersed himself in learning about the disease, little is known about uveitis. “It’s not a ‘sexy’ disease with hundreds of millions of dollars in research. Lack of detection adds to our country’s medical costs. As the parent of a child with a chronic disease, I know enough to explain to people what they need to do. I also know enough to tell them that early detection is the key. If treated early, chances are that a person will have normal sight for the rest of their life. Samantha is still in treatment and has preserved her eyesight, but had the cellular damage not been diagnosed, she could have been blind by now.”

For more information on uveitis, visit uveitis.org, uveitis.net, and the Massachusetts Eye Research and Surgery Institution at mersi.us.


Gibson Custom Shop SG (LEFT) – “I worked with Jay Jay on three guitars,” says Gibson’s Steve Christmas, “the Les Paul Standard, the SG Standard Reissue based on a 1962, and a ’63 ES-335 Block Reissue. All three were built in the Gibson Custom Shop by our Pro Shop luthiers. All three have a slim-taper neck and are standard production models with the Pinkburst finish—which has never been duplicated on any other models in the Custom Shop.” Marshall 1959 Super Lead Reissue and 1960A 4x12 (CENTER) – “Marshall has been my company exclusively for 35 years,” says French. “When I told them what I wanted, they said, ‘You’re family. We’ll do whatever it takes.’” Orange Rocker 30 (RIGHT) – The class A, 30-watt Rocker features two EL34-driven channels, a Celestion Vintage 30 speaker, and grill cloth screen-printed by Jeron Moe at Eloquent Creative. “I spoke to Alex Auxier from Orange Amps at NAMM,” says French. “One day he called me and said, ‘What’s the name of that disease again? My best friend’s girlfriend has it. We want to be involved.’”

« Previous    1 | 2 | 3 | 4 | 5 | 6    Next »

Related Articles

Summer Survival Giveaways Day #17: Cleartone Strings
Seagull Guitars Announces New Excusrion Series


Comments

(6 comments) display by
UsernameComment
RobynCS
on 07/17/2012
Ms. Halbersberg is one of the finest writers and turned in a great article. Thank you for alerting us all to Uveitis via Jay Jay and his daughter. And thank you Premier Guitar for being so informative!
JH
on 02/11/2011
If you or anyone you know is suffering from Uveitis, please visit the pinkburstproject.org site and share your story on the Guest Book page. We cannot thank Premier Guitar enough for their amazing story and support! Thank you!
shawn
on 02/09/2011
I have Uveitis and the comments about it not being researched is true. I've lost most of my eyesight through the last 10 years. Had no insurance until I went completely broke. A big problem is most eye Dr.s know little about it but wont refer you somewhere else, leading to terrible care for most of us. Can't see Dr Foster in Boston because it's very expensive. Im from Long Island and the first show I ever saw was Twisted Sister at the 2001 roller rink in maybe 1982. Thanks Jay Jay, you're literally the ONLY person talking about this excruciatingly painful and debilitating disease. Note to musicians; Dont be so scared to play with the blind guy, they work harder. They have to. I am not the liability, your ignorance is. Yeah my gear is not the hottest (had to hock all the good stuff) but try to notice the skills. Getting people to jam with a disabled person is almost impossible. Its mostly the "cant drive" thing. So stupid. Great article. Great work JJ and friends. Good Luck to your daughter.
GailPink
on 01/25/2011
View the complete press release and details here:

http://www.worleygig.com/2011/0 1/pink-thing-of-the-day-pinkburst-projec t/

Dan
on 01/24/2011
Awesome project. Kudos to Jay Jay and all the manufacturers for making it a reality. And you collectors out there better put your best foot forward and make great bids for this gear. Remember. It's for a good cause.
Kevin Robinson
on 01/22/2011
This is an awesome concept. The coolest pink on a guitar I've ever seen. My fave color is pink, and this article really gets my attention. Favorites are the 6120 & 335. My wife says that my ? of pink is indicative of my ? for music. Go figure. ¶ Premier Guitar, if possible, please post a follow-up article after the auction, indicating amount of $ raised, and what each went for.



Your Comment:  

All comments are subject to editing or deletion by the Premier Guitar staff.

Your Name:  


Please enter the text you see in the image:  
10

20517982-7CFC-4424-8C45-1DC255DD7C77